Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
For our community members affected by GAN We wanted to share news we’ve received with our community members affected by giant axonal neuropathy (GAN). Taysha has made the difficult decision to discontinue the development of the investigational gene therapy candidate, TSHA-120, for the treatment of GAN.
And feedback from our August community ask We’d like to share our Ask Our Community for September:
A comedy short produced by the Newborn Screening Collaborative As a member of the Newborn Screening Collaborative, we are thrilled to share the promotional poster for the upcoming comedy short, “A Rare Find”, a film which we hope will help kickstart a conversation surrounding newborn screening!
September 2023 Our Research Summary for September 2023 is ready to view.
Win a portrait of your furry friend! This Leukodystrophy Awareness Month, we are hosting a Pet Portrait Raffle to raise vital funds and help us continue to support those affected by leukodystrophies. The prizes available are:
