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Our events

Our Support Services team organise a range of different events for community members to attend. Some events are virtual and others are in person, this is to ensure there are appropriate events for all individuals and families affected by leukodystrophy.
If you have any questions or if you’d like to attend an event, please email info@alextlc.org

Community Weekends

Our annual Community Weekend brings together leukodystrophy sufferers and their families, alongside doctors, researchers and scientists from around the world to discuss how leukodystrophies affect them and to build long lasting and supportive relationships. For more information, click here

Upcoming community events

See All Events
  • 25 Jun 2026

    Thu 25th Jun 2026

    Online community meeting

    TIME: 11:30-13:00 (BST – UK time) LOCATION: Zoom This meeting is our general monthly online community meeting which can be attended by any of our community members. The meeting is facilitated by a member of the Alex TLC support team.  To find out more about these meetings, visit our peer support page. If you’d like […]

  • 30 Jun 2026

    Tue 30th Jun 2026

    Online meeting: affected women

    TIME: 18:00-19:30 (BST – UK time) LOCATION: Zoom The meetings are facilitated by members of Alex TLC support team.  The meeting can only be attended by affected women. We hope these meetings will provide a space to connect with others facing similar challenges and who truly understand your situation. If you’d like to attend or […]

  • 29 Jul 2026

    Wed 29th Jul 2026

    Online meeting: partners of affected adults

    TIME: 18:00-19:30 (BST – UK time) LOCATION: Zoom The meetings are facilitated by members of Alex TLC support team.  The meeting can only be attended by partners of affected adults. We hope these meetings will provide a space to connect with others facing similar challenges and who truly understand your situation. If you’d like to […]

  • 27 Aug 2026

    Thu 27th Aug 2026

    Online meeting: family members/carers of affected adults

    TIME: 18:00-19:30 (BST – UK time) LOCATION: Zoom The meetings are facilitated by members of Alex TLC support team.  The meeting can only be attended by family members/carers of affected adults. We hope these meetings will provide a space to connect with others facing similar challenges and who truly understand your situation. If you’d like […]

  • 09 Oct 2026

    Fri 9th Oct 2026

    Community Weekend 2026

    Our Community Weekend 2026 will be taking place from Friday 9th to Sunday 11th October. The event is being held at The Manchester Deansgate, by IHG hotel. To find out more, please visit our Community Weekend 2026 webpage.