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28th May 2026

News Round-Up

We have sent out the May edition of our monthly news round-up. This month we will be sharing about a job opportunity within the charity, upcoming online community meetings, the devastating flood at one of our charity shops and ways you can get involved.

30th April 2026

News Round-Up

We have sent out the April edition of our monthly news round-up. This month we will be sharing about upcoming online group meetings, celebrating 2 years of Alex TLC’s 50/50 Cash Draw, one to one support and our online shop.

29th April 2026

Research Summary: April 2026

Our Research Summary for April is ready to view. Our Research Summary includes information about recent leukodystrophy research and clinical trials.

23rd April 2026

Charity Impact Survey 2026

Please complete our Impact Survey 2026 and share your feedback. For anyone who has a connection with Alex TLC through their/the person they care for leukodystrophy.

An image showing the title of the post 'Equipment, devices or phone apps for seizure alerts', an image of several devices and an image of a person's head and the Alex TLC charity logo.

14th April 2026

Community Ask for April

A community member would like to know if anyone uses any equipment, devices or phone apps for seizure alerts.

26th March 2026

News Round-Up

We have sent out the March edition of our monthly news round-up. This month we will be sharing about events we’ve been attending, your chance to have your say on supporting us and Ask our Community.

10th March 2026

Asking our community for their help

Ask our community provides an opportunity to ask our community members for information, suggestions, recommendations, or feedback about their experiences.

3rd March 2026

SfE BES Conference 2026

We attended the Society for Endocrinology – British Endocrinology Society (SfE BES) conference.

3rd March 2026

Online community meeting

Our next online meeting will be taking place on Thursday 26th March 11:30-13:00 (GMT – UK time).

24th February 2026

News Round-Up

We have sent out the February edition of our monthly news round-up. This month we will be sharing about Rare Disease Day, our counselling service, lighting up our stained glass window and newborn screening updates.