26th October 2026
Research Summary: October 2026
Our Research Summary includes information about recent leukodystrophy research and clinical trials, including article summaries and direct links to websites and articles.
Stay up to date
26th October 2026
Our Research Summary includes information about recent leukodystrophy research and clinical trials, including article summaries and direct links to websites and articles.
23rd October 2026
Watch presentations from our Community Weekend 2026 on our YouTube channel.
2nd October 2026
Our next online meeting will be taking place on Thursday 22nd October 11:30-13:00 (BST – UK time).
30th September 2026
This month we will be sharing about our charity impact report, donating to our community weekend, FreeWills Month and treatment updates for MLD & Alexander Disease!
18th September 2026
A community member would like to know if anyone else has had to cope with having an arm in a sling for a number of weeks.
15th September 2026
Our steering group meeting will be taking place next week on Thursday 24th September from 18:00-19:00 on Zoom.
2nd September 2026
We are pleased to announce that our Charity Impact Report 2026 is now available to view.
28th August 2026
This month we will be sharing about leukodystrophy awareness month, the newest member of our team, wear it blue and joining our community weekend virtually!
25th August 2026
Please complete this survey if you have used our Support Services at any time. This includes one to one support, online community meetings, our connecting together programme and our Facebook group.
30th June 2026
We have sent out the June edition of our monthly news round-up. Please sign up to receive correspondence from us including our news round-up.
23rd June 2026
Our Research Summary for June is ready to view. Our Research Summary includes information about recent leukodystrophy research and clinical trials.
22nd June 2026
Our children’s book for ALD is now available in French. Our children’s book is to support the siblings of children diagnosed with childhood cerebral adrenoleukodystrophy (CCALD).