30th June 2026
News Round-Up
We have sent out the June edition of our monthly news round-up. Please sign up to receive correspondence from us including our news round-up.
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30th June 2026
We have sent out the June edition of our monthly news round-up. Please sign up to receive correspondence from us including our news round-up.
23rd June 2026
Our Research Summary for June is ready to view. Our Research Summary includes information about recent leukodystrophy research and clinical trials.
22nd June 2026
Our children’s book for ALD is now available in French. Our children’s book is to support the siblings of children diagnosed with childhood cerebral adrenoleukodystrophy (CCALD).
11th June 2026
Our accredited counsellor, Mel, provides free counselling to our adult community members. She also offers emotional wellbeing phone calls to those who need someone to talk to.
10th June 2026
In June our CEO, Sara, visited a specialist rare disease centre at Motol University Hospital in Prague as part of her ERN-RND patient advocate duties.
28th May 2026
We have sent out the May edition of our monthly news round-up. This month we will be sharing about a job opportunity within the charity, upcoming online community meetings, the devastating flood at one of our charity shops and ways you can get involved.
30th April 2026
We have sent out the April edition of our monthly news round-up. This month we will be sharing about upcoming online group meetings, celebrating 2 years of Alex TLC’s 50/50 Cash Draw, one to one support and our online shop.
29th April 2026
Our Research Summary for April is ready to view. Our Research Summary includes information about recent leukodystrophy research and clinical trials.
23rd April 2026
Please complete our Impact Survey 2026 and share your feedback. For anyone who has a connection with Alex TLC through their/the person they care for leukodystrophy.
16th April 2026
Our children’s book to support the siblings of children diagnosed with CCALD is now available in English, Spanish and German.
14th April 2026
A community member would like to know if anyone uses any equipment, devices or phone apps for seizure alerts.
26th March 2026
We have sent out the March edition of our monthly news round-up. This month we will be sharing about events we’ve been attending, your chance to have your say on supporting us and Ask our Community.