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Where your money goes

We do our utmost to ensure your money is spent wisely and in the areas of need identified through our impact reports.
Our charity shop profits are used towards staff salaries and core costs. We understand the importance of having a variety of different income sources and strive to increase our income from Trusts & Foundations, businesses, and members of the public, to ensure long-term sustainability.

Examples

The following are just some examples of how your donations could fund our vital work:

  • £10 – distribution of vital information to someone newly diagnosed with a leukodystrophy
  • £50  – two hours of one to one telephone or zoom support
  • £100 – a dedicated support session at home to address fears, concerns and questions from the whole family
  • £500 – a financial grant for an individual or family affected by leukodystrophy through our grant programme
  • £1,000 – dedicated one to one support and advocacy for a newly diagnosed family during the first year of their leukodystrophy journey
  • £2,500 – attendance for a family of 4 at our Community Weekend
  • £5,000 – development of an additional book to support children living with leukodystrophy

Your donations helps us to reach more people with our valuable service. Please donate now or find out how you can get involved to raise awareness, volunteer or fundraise for us.

Funding research

Alex TLC is the recognised voice for leukodystrophy patients in the UK – pharmaceutical companies often request our assistance in the development of, and recruitment for, clinical trials.

Although we cannot fully fund medical research trials due to the costs involved, we recognise that our community are keen for us to support research in a more tangible way, and we launched a new research strategy in 2023 to directly address this.

As part of this strategy we:

• can provide financial grants for research projects – contact info@alextlc.org for more information
• will give our supporters the opportunity to donate specifically to our research based activities
• assist Leukolabs to apply for research grants from organisations such as the National Institute for Health and Care Research
• commission qualitative research with organisations such as Sheffield Hallam University

Donate to our research based activities