11th June 2026
Access counselling sessions
Our accredited counsellor, Mel, provides free counselling to our adult community members. She also offers emotional wellbeing phone calls to those who need someone to talk to.
Stay up to date
11th June 2026
Our accredited counsellor, Mel, provides free counselling to our adult community members. She also offers emotional wellbeing phone calls to those who need someone to talk to.
4th June 2026
The NHS England IWMD Diagnostic and Management Service aims to implement national standards of care for patients of all ages with an IWMD (leukodystrophy).
10th March 2026
As Mother’s Day approaches, it can lead to mixed and complicated feelings for many. Our Counsellor, Mel has some comforting advice for those who need it.
23rd January 2026
Over the wall camp provide free camps and experiences for children and young people living with medical health challenges, their siblings and their families.
6th January 2026
The Northern Ireland Department of Health published its third progress report on the Rare Diseases Action Plan covering progress made in 2024-25.
23rd December 2025
Each month we are introducing professionals from the NHS England IWMD team. Dr Lydia Green is a Paediatric Neurologist at Leeds Children’s Hospital.
16th December 2025
Connecting Together involves us putting families and individuals in our community in contact with each other.
15th December 2025
Our Support Services Impact Report 2025 is available to view.
This impact report was based on the findings from our Support Services Impact Survey which gathered the views of those who have accessed support within the charity.
9th December 2025
At Alex TLC, we believe no one should face leukodystrophy alone. But right now, our resources are stretched thin.
14th November 2025
The NHSE IWMD Registry is an online clinical database that contains information about people with IWMDs or leukodystrophies. You can find out how to join.
6th November 2025
ULF are holding a First Aid and CPR webinar to better understand adaptive first aid strategies.
30th October 2025
We’e worked with IWMD clinicians to create a short survey to share your/your child’s experience of the Inherited White Matter Disorders (IWMD) Service.