We provide small financial grants for families and individuals affected by leukodystrophy.

This financial support is for patients and families to access equipment, care or therapy, those undergoing Bone Marrow Transplant/Gene Therapy or for families in financial hardship or going through bereavement. We also offer grants for those wishing to access counselling outside of the sessions offered by our counsellor. To find out more about how to access counselling sessions in the charity, please visit our counselling service page.

We will assess each grant application on an individual basis. Your application must meet the conditions and include the required evidence as set out in our Grant Giving Policy.  Grants are given for items and treatments not otherwise covered by the NHS, or relevant health service in your country.

Grant programme documents

Our Grant programme documents can be viewed below. The policies set out the conditions which must be met when applying for the different types of grants. The grant application form must be completed and returned, with the required evidence, to info@alextlc.org

If you have any questions or need assistance completing the form, please do not hesitate to get in touch.

Travel grant policy

Grant giving policy

Grant application form: word version or PDF version