4th May 2026
Online Community Meeting
Our next online meeting will be taking place on Wednesday 20th May (BST – UK time).
Stay up to date
4th May 2026
Our next online meeting will be taking place on Wednesday 20th May (BST – UK time).
4th May 2026
We have planned a range of different group specific meetings over the next few months, including for parents of affected children and affected men.
30th April 2026
We have sent out the April edition of our monthly news round-up. This month we will be sharing about upcoming online group meetings, celebrating 2 years of Alex TLC’s 50/50 Cash Draw, one to one support and our online shop.
23rd April 2026
Please complete our Impact Survey 2026 and share your feedback. For anyone who has a connection with Alex TLC through their/the person they care for leukodystrophy.
22nd April 2026
A community member would like to find out about others’ experiences of Bone Marrow Transplant (BMT) follow up care after a BMT for Adrenoleukodystrophy (ALD).
16th April 2026
Our children’s book to support the siblings of children diagnosed with CCALD is now available in English, Spanish and German.
14th April 2026
A community member would like to know if anyone uses any equipment, devices or phone apps for seizure alerts.
2nd April 2026
Our next online meeting will be taking place on Thursday 23rd April 11:30-13:00 (BST – UK time).
26th March 2026
We have sent out the March edition of our monthly news round-up. This month we will be sharing about events we’ve been attending, your chance to have your say on supporting us and Ask our Community.
10th March 2026
Ask our community provides an opportunity to ask our community members for information, suggestions, recommendations, or feedback about their experiences.
10th March 2026
As Mother’s Day approaches, it can lead to mixed and complicated feelings for many. Our Counsellor, Mel has some comforting advice for those who need it.
3rd March 2026
Our next online meeting will be taking place on Thursday 26th March 11:30-13:00 (GMT – UK time).