News

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Pet Portrait Raffle

September 2023

Win a portrait of your furry friend! This Leukodystrophy Awareness Month, we are hosting a Pet Portrait Raffle to raise vital funds and help us continue to support those affected by leukodystrophies. The prizes available are:

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Hospice Grant for Leukodystrophy Awareness Month

September 2023

We’d love to hear your nominations 💙 As part of Leukodystrophy Awareness Month we would like to recognise the amazing part hospices play in helping care for loved ones with leukodystrophy and will be awarding two grants of £1,000 each.

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ALSP Webinar

September 2023

Vigil Neuro holding community webinar Vigil Neuroscience’s ALSP community webinar to be held on September 26, 2023 from 17:00-17:45 PM (BST)/12:00 – 12:45 PM EST. The program objectives will include:

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