2nd October 2026
Online community meeting
Our next online meeting will be taking place on Thursday 22nd October 11:30-13:00 (BST – UK time).
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2nd October 2026
Our next online meeting will be taking place on Thursday 22nd October 11:30-13:00 (BST – UK time).
28th August 2026
Our next online meeting will be taking place on Tuesday 22nd September 11:30-13:00 (BST – UK time). Our general monthly online community meetings are open to anyone affected by leukodystrophy.
30th June 2026
Yaya Foundation are holding an online call on Sunday 12th July at 7pm. The call will include a discussion led by Dr. Valerie Gregor and family call.
4th June 2026
We have planned a range of different group specific meetings over the next few months, including for parents of affected children and affected men.
28th May 2026
We have sent out the May edition of our monthly news round-up. This month we will be sharing about a job opportunity within the charity, upcoming online community meetings, the devastating flood at one of our charity shops and ways you can get involved.
4th May 2026
Our next online meeting will be taking place on Wednesday 20th May (BST – UK time).
30th April 2026
The Brain Health Learning Centre are holding a webinar exploring one of the most important and fast moving areas in dementia. The webinar will provide an introduction to childhood dementia.
2nd April 2026
Our next online meeting will be taking place on Thursday 23rd April 11:30-13:00 (BST – UK time).
3rd March 2026
Our next online meeting will be taking place on Thursday 26th March 11:30-13:00 (GMT – UK time).
5th February 2026
Our next online meeting will be taking place on Wednesday 25th February 11:30-13:00 (GMT – UK time).
27th January 2026
Our January 2026 edition is available. This month we will be sharing about our Community Weekend 2026, the opportunity to abseil down the Falkirk Wheel, plans for Rare Disease Day and our Teemill shop.
23rd January 2026
Over the wall camp provide free camps and experiences for children and young people living with medical health challenges, their siblings and their families.