Ask our community

How to tell their other family members and friends about a diagnosis of leukodystrophy

Suggestions from our community:

• I had support from Karen and Jenna in telling our adult children, they supported us (me and my partner) from the start and continue to be supportive.
• I told my closest family on the day I received the diagnosis letter in the post. The rest I let know a month or so after through a Facebook post. When making new connections I try and find the right time. On my online profiles (and where-ever else, in person) I try to make sure that I reference the AMN so that I’m being upfront. The way I see it is, that if someone for some reason were to have a problem with my diagnosis then it’s the universe’s way of saying that it’s not meant to be.
• Don’t rush into it; instead take your time, and when you’re ready to tell someone gently guide the conversation to it in an organic way. At the same time, don’t fabricate half-truths before you tell them about your diagnosis because they could infer you as being a bit of a liar.
• Regarding starting a conversation about it, I like to ease into it by perhaps talking about a certain symptom – for example, my legs causing mobility problems. That tends to have a snowball effect in that it opens things up and allows the other conversation participant to ask questions if they want to.

Advice for travelling on public transport for those with limited mobility or using mobility aids

Suggestion from the community:

With most Railways you can book “assisted travel” called Passenger assist via the National Rail website. Passenger assist I have used on numerous occasions at times where I haven’t felt confident to lift my sons wheelchair up onto the steep step of the train alone; they provide ramps and even assistance to your designated seat if you need it. Furthermore if you’re travelling via train to an area you’re not familiar with; the operator can also assist you with how to get out of the trains station

Suggestions for recommendations of accessible places to visit during the summer holidays

Suggestions from the community:

Accessible Days Out

• National history museum (if you ring they’ll reserve you a space within the grounds with wheelchair accessible entrance)
• Coliseum London Theatre (were great and upgraded us to a box)
• Chester zoo (great – very accessible & changing places)
• Moors Valley Country Park in Dorset (Changing Places toilet with hoist and 2 Trampers are available to hire)
• Mudeford Quay in Dorset
• Poole Quay in Dorset
• RSPB Arne (as seen on TV – Trampers available)
• Space Centre in Preston (an indoor sensory play for disabilities they have so many sensory toys you can also take in there too my son absolutely loves it here)
• Science Museum (London)
• Winchester Science Centre
• Milestones Museum (Basingstoke)
• Flying Army Museum (Middle Wallop)
• Paultons Park (Romsey)
• STEAM Railway Museum (Swindon)
• Beale Wildlife Park (Reading)
• The Living Rainforest (Hampstead Norreys)

Accessible Holidays/Accommodation

• Holistic Thinking Holidays
• The Holiday Homes Trust (most are accessible)
• Center parcs
• Lake District – many wheelchair accessible and adapted caravans and lodges beautiful views and easy bus routes I can recommend Ulverston & Windermere

A community member wants to know, what you are getting your children for Christmas? She has a 10 year old son, who has CCALD (Childhood Cerebral Adrenoleukodystrophy). He is the size of a 14 year old and she isn’t sure how good his vision is but has said his hearing is good. She ideally wants something fun for him.

Suggestions from the community:

• Spotify (without the adverts)
• Audio books/music
• A projector with lights that go across the room and music you can connect your phone to some and play his favourite band
• A box of 12 envelopes each month wrote on the front: inside being a special trip to somewhere i.e the zoo the aquarium etc all his favourite places 12 beautiful family trips – so he can hear the sounds of the animals and lots of places have earphones that tell you about everything
• His friends and family could make videos of messages and songs etc and he could listen to them whenever he wanted
• A fart machine (lots of different fart sounds that come out at random) which our son thought was hilarious in the early days
• When our son left school his class mates put together a recording of them all telling him jokes which he enjoyed a lot
• Audio books (David Walliams was a particular favourite)
• An electronic keyboard
• Wireless headphones to listen to music (or books)
• Local theatre to hear a brass band
• A Toniebox with characters (Tonies – Tonieboxes)

A community member asked for recommendations of equipment or support aids you have used and found helpful.

Suggestions from the community:

Mobility

• Small wheelchair friendly van
• Handling belt to keep someone from falling
• Wheelchair
• Mobility scooter – mostly for shopping
• U-Step 2 Link
  Perfect for maintaining some mobility and independence. I got it from the neurology team. It doesn’t run away with me. When I let go of the handles, the breaks are on. (Extra stability). The seat means I can rest when I need to. I can only walk short distances.
• Crutches
• Scooot Link

Around the house

• Hoist
• Shower chair
• Handle on wall for getting out of the shower – nice black and silver one
• Shower stool
• Non-slip shower mat
• Bed Rail
• Raise couch to be make it easier standing up
• Stair lift

Other useful items

• Plastic backed paper pads for seating in case of urine leakage
• Fall bracelet Link
• Wondersuits (type of babygrow that child can’t undo) Link
• Certraban Link
• HEAROS cool hearing aid stickers Link
• Allevyn gentle border for children that can crawl Link

Please be aware links are to provide an example of the item, we aren’t suggesting you use the companies listed to purchase any items.

A community member asked for recommendations for holiday accommodation in the UK suitable for a family with a 14 year old wheelchair bound boy with ALD.

Suggestions from the community:

• Family with son with ALD stayed at self-catering cottage in peak district called Hope Cross Cottage. It was set up for a family of 4 including one with disability and included a mobile hoist: website

• Brickhouse cottages near Blackpool. Includes profiling bed, ceiling hoist, accessible hot tub, wet room, bookable hydro pool on site and a restaurant. They run quiz and cinema nights. website

• Crescent hideaway, Weston-super-mare. Fantastic reviews and the owner can provide additional care if required website

• Calvert Trust – brilliant activity holidays for disabled kids. One in Kielder Forest has a swimming pool, zip wiring, abseiling, orienteering, canoeing all adapted for kids with the most severe disabilities. Whole family stayed in an adapted cabin with wet room, hoists etc. website Other centres in Exmoor (website) and the Lake district (website)

• Island Riding Centre, Isle of Wight. They have accommodation suitable for wheelchair users. We stayed in the Pegasus cottage. The wet room is spacious and on ground floor along with a bedroom and 3 others upstairs. You can hire hoist and stand aid and riser bed etc from Island Mobility who deliver to the property. website

• We went to stay in a lovely cottage called The Owl House near Telford last month. It’s an old farm building in the owners’ orchard. They converted it for the lady’s disabled mother. Has its own hot tub, and a swimming pool in the owners’ garden. There is a beautiful wet room, but the shower is not very powerful. About 25 minute drive to Ironbridge and the museums. website
• Able stay London – has specially adapted houses for people with additional needs and have been recommended by a friend: website
• Another possible company: website

• Speak to Rays of sunshine as they organise holidays and visits for children with additional needs and may know of places: website

• Highly recommend Haystax Inclusive Farm Experience and Lodges we have been twice this year and they go above and beyond! They blended meals for us in their cafe, they put sensory toys, beanbags, bubble tubes in the lodge. They have everything you could need and more: website

• Although it covers the world you can also search UK in Wheelchair Accessible Places and Activities: website

• Tourism for all UK: website

• My son is wheelchair bound (can’t stand or walk) 5 years old however we reached out to a charity called Alice’s Escapes (cancer & other terminal/life limiting conditions) who provide holidays for families (hoists & wetroom included) in the Lake District. They are fully accessible lodges with a ramp and money off Local safari zoo. We went last year. Highly recommend. website

• Trevassack Holidays in Cornwall: website
• Brickhouse Farm Cottages in Lancashire: website
• Flat Spaces Foundation in Hampshire: website

• There is a Facebook page Accessible, Adapted or Disabled Holiday Lets, Places to Visit & Days Out UK with lots of suggestions: website

A community member asked for advice as her adult son wants to write a book about his life with Adrenoleukodystrophy (ALD). He is unable to write the book himself and would need support when developing the content of the book.

A community member suggested the following ideas:

• decide who the book is for, then choose a style for that audience. I. e. If it is for fellow ALD patients and families and the story is autobiographical use ‘I’ and ‘we’. If it is supposed to inform the wider world and they are not only writing about their own experience they may want to use a more formal style.
• decide on a provisional structure (that can always be totally changed, so don’t get stuck on the first idea). That structure will help organise ideas about content. E.g. chronologically through their life, or themed around issues they have encountered, or other people they interact with.
• does the person writing have speech? If speaking is easy invest in a device that can take voice notes and that can be used to label those recordings according to the structure they have chosen to start with. Most good mobile phones do that. If not an old-fashioned Dictaphone that produces MP3 files that you can load onto a laptop or PC. Whatever tech they are comfortable with. That way they can capture their ideas and thoughts and when they feel they have enough to make it interesting then they can look at how to get it into a printable text.

Another community member suggested finding a ghost writer to assist with writing a book and recommended the following websites. They recommended to ask for samples of their writing, or past projects, and find someone who’s voice fits the story that’s going to be told. They suggested three possible websites to find ghost writers: website1, website2, website3.

Our team has suggested these options:

One option is to contact local colleges and ask if they have any students who are on a writing course that could support this project. Another option is looking at getting a ghost-writer by reaching out to local writing groups or colleges and see if any students completing a writing course would be willing to help.

Our writer and illustrator or our Children’s ALD Book advised:

Someone local would be the best route. A factor to consider is whether or not this is a children’s picture book, a novella, or a longer piece. Writing courses are a good option, but local Facebook groups might be another avenue. A recently retired individual, with fresh time to fill, a pension to support them, and looking to do some good could be ideal, particularly if they worked in a professional capacity where they have some word processing and good English skills, would be a really good fit.

A community member asked for recommendations for flotations and support aids to be used in swimming pools.

Suggestions from our community:

• Pool noodles are good for going under arms and legs if you want to float
• Chailey headrest to support head in water – community member borrows it from local hospice as they can be expensive to purchase
• Aquafit Upright Float: website
• Sling Mesh Noodle Chair: website
• Swim Jacket with safety strap underneath

A community member asked for suggestions for an appropriate sensory gift for a 1 year old boy affected by infantile Krabbe Disease.

Suggestions from our community:

• Fluffy or silky clothes
• Textured and crinkly fabrics
• Gentle music or story CDs
• Microwavable blanket
• Projector for the ceiling: can be watched whilst in bed and there are a variety available, including starry night
• Sensory Items: microwaveable teddy, soft fluffy socks, aromatherapy oils

A couple of websites that sell sensory toys were also recommended:

Sensory Toy Warehouse: website

Baby Sensory Shop: website

A community member asked for people’s experiences of using stairlifts and recommendations of brands and types used.

Suggestions from our community:

• One community member has had a Flow2 stairlift for about 4 years. It was installed by Dolphin Stairlifts. The stairlift goes up the stairs backwards. She shared a link to a video showing her son using the stairlift: video

• Another community member used the Norfolk stairlift company to install their stairlift. They found them very helpful; they came out to assess and measure the stairs and the individual, and fitted the stairlift within two weeks.

There are a couple of websites which provide helpful information when it comes to choosing and installing a stairlift:

• Essential Stairlift Information – Age UK: website
• Buying and installing a stairlift – Which?: website

A community member asked for tips or suggestions to keep cool in the hot weather.

Suggestions from our community:

• A neck fan from Amazon, it has three speeds and can be charged using USB cable
• Cold flannel
• Drink lots of water
• Fans (ceiling and floor)
• Cotton clothes
• Put feet in cold water
• Hydration sachets
• Cool shower

A community member was experiencing difficulty brushing their teeth (due to tremors and weakness in their hands and arms) and asked for advice or helpful tips.

A community member suggested a toothbrush called Dr Barman’s Super Brush. It makes the process of brushing teeth much quicker because of the shape of the toothbrush it cleans all sides of the teeth at the same time. They are available on Amazon.

As a team we had some ideas that may be helpful:

• Brush teeth in sections at a time
• Sit and rest/balance arm whilst brushing teeth
• Talk to dentist about prescription toothpaste
• Listen to music whilst brushing teeth to help calm
• Use mouthwash to help clean teeth

A community member asked for tips and suggestions for keeping warm in the winter.

Suggestions from our community:

• Heated blankets
• Hot water bottle
• Thick or thermal socks
• Giant hoodies/Wearable blanket
• Fluffy blankets
• Heatable teddy or wheat bags
• Layers of clothing

We would like to know, do you or a loved one use adaptive clothing? A family has asked for recommendations of where to get adaptive clothing which can be used by someone in a wheelchair.

• TK Maxx or Marshalls for button down onesies
• Long sleeve vests from Asda with popper close in the groin and a slit in the stomach for a feeding tube – they wash well, keep the persons back warm, don’t ride up and keep their arms warm when wearing a t-shirt
• Silk or sliding materials
• poncho – easy to put on and slides down back of wheel chair
• Wear jackets on back to front
• Cycling rain mac
• Accessible clothing shops such as Adaptawear and the The Able Label

A family have asked if anyone has any experience with air tags or similar for helping to locate a loved one. It needs to be accurate inside a building such as a train station etc.

• I haven’t used Apple Air Tags myself but I know people who have and they find them very good to use. This is especially the case for other devices, luggage etc. They are small enough to fit into a wallet or a purse. Normally on Amazon, you can buy a pack of four https://amzn.eu/d/1bdAIl6
• The “find my friend” function which is a built in app on Apple phones is really useful, so long as you get the other person set up correctly and they accept the invites.
• If there is mix of people using Apple and Android devices, a useful app is LIFE360. https://www.life360.com/uk/ Some features are only available on subscription but I use just the free plan and that works every well also.
• I did purchase a tracking device similar to an airtag back in September. I did find issues like the device only works when it can pick up a signal. So at train station’s it worked, but on the train itself it didn’t or anywhere out of range also it didn’t work. It recently broke.
• We found the apple iphone find my better than the airtag.
• I use an apple airtag on my dog and it’s brilliant works within a few feet.
• When my mum was diagnosed, I got her an Apple Watch. Can track as long as she has her phone with her, which thankfully she usually does. It also has a falls alert that will automatically call an ambulance to her location if she doesn’t move after the fall.

Does anyone have any recommendations for a care home for adults in Bedfordshire? And does anyone have any hints or tips on what to look for or questions to ask when viewing care homes?

Response 1

Whilst I cannot comment on care homes in Bedfordshire I can share what I have learnt in the last few months. It was necessary for my wife to move into a nursing home last October. She is suffering from Late Onset Alexander’s Disease.It can be a very traumatic time for you, your loved one and your wider family.

• Firstly do you need Nursing care, if yes then you need a Nursing home. Not all care homes are certified to provide nursing care. Nursing care beds are more difficult to find than basic care home beds. Nursing homes have age restrictions as part of their registration.
• Use on line tools to scout for homes in the location that you want.
• Talk to others who are / have been in the same situation as your self.
• Consult your local authority Social Services department. Have you got a designated social worker assigned to you / your loved one.
• Read and digest the CQC report for each home. Note how recent it is. https://www.cqc.org.uk/
• Create a short list, visit their location and get a feel for the external aspects of the home – age of property, state of building repair, the grounds, parking etc. Arrange a visit to and a tour round the home. Try to be accompanied on any visit. Note the age and ability profile of residents and make a judgement as to if your loved one will fit in. This is very important as your loved one needs good meaningful and stimulating interaction with the existing residents.
• Money, money, money. Are you paying for the care or is it to be funded by Social Services or NHS funded care. Care homes are very expensive. Respite care can be 20% more expensive than long term care. Most homes will only take you on respite care initially. For permanent care you will need to provide evidence of funding for a period of 2 or 3 years in the name of the resident. Bonds may well be required as security. You are looking at in excess of £75 K per year. There are schemes / insurance back products that can allow you to utilise your assets to cover care costs. Talk to a specialist financial advisor.
• Be prepared for it to be traumatic as none of use one to more a loved one out of the family home and into a place of care. Once the trauma is over you will all accept that this is the best thing that you have done for both yourself and your loved one. In the case of my wife it took 2 to 3 months for my wife to accept that her nursing home was the best place for her to be.

Response 2

My mother of 99 went into a care home for a 3 week stay after she broke her hip(which turned into 4 weeks due to their bad running). We visited the home and felt at the time it was the right place, had a good write up, and is part of a well trusted group in the South.

• Is the adult able to communicate with staff to tell them of their needs? My mother has Alzheimers so found it all a bit confusing and traumatic. Communication, communication, communication between staff. ( or lack of in my mum’s case). And communicating to you ie if you ring whilst possibly on holiday.
• How do they check if physio is required,medication, food is eaten, fluids are checked(which they weren’t in my mother’s case.They didn’t seem to understand that gentle persuassion was needed).How do they include the adult in everyday life.ie taking into a restaurant, involved in daily activities. Even the basics of getting dressed and having their hair combed.
• Is the adult able to have a 3/4 week stay to check it out? My mum is thank goodness now back in her supported living flat where the staff are lovely.

Response 3

I had a terrible experience with care homes for my son that I wouldn’t want anyone else to go through so here are some suggestions:

• Make sure the care home REALLY understands what it means to have XALD and how this impacts the individual and what may happen in the future so that they are prepared. Explain that effectively it’s like having a brain injury and that the individual should not be blamed for the resulting behaviour but treated with kindness, dignity and understanding.
• Ensure that they will not be given any drugs without consulting with you first – the danger of your loved one being given a chemical cosh is very real.
• Ensure that there will be regular weekly activities that your loved one will enjoy – and that these actually take place, ask for photographs.
• Visit as regularly as possible and not by appointment so that you can spot any evidence of lack of care e.g. dirty or untrimmed finger nails, being left unshaved, being left in soiled clothes or bedding, unexplained cuts or bruises, wearing someone else’s clothes etc. If establishments require visits by appointment only this is a red flag – whatever the excuse (|policy, staffing etc.) 4)Ensure that suitable healthy food and dietary requirements are adhered to.
• Look for somewhere that has consistent, longstanding staff – rapid staff turnover is a red flag.
• Get the standard of care you expect agreed upon IN DETAIL with the provider in advance AND in writing. Ask for regular meetings with management to discuss any changes or adjustments that need to be made and ensure these actually take place.
• Look for and ask about the involvement of speech therapists, physio etc – again, get it in writing.
• Look for safety measures, e.g. can they leave the premises without being noticed, are they in danger from other residents or poor care standards.
• Ask how long other residents have been there and ask to be put in touch with other families who have residents there. Ask those families about their experience and any difficulties they have had.
• Ask about how they deal with dentist, doctor and hospital appointments (abiding by appointment times, transport, adequate number of carers etc.) and ensure you are kept informed of all of these and make sure you are present for appointments. I might suggest you look at CQC reports but these are generally so inaccurate that they are almost worthless.

Response 4

I don’t have local advice for Bedfordshire but general advice is:

• Consideration of person’s needs now and in the future – and ensuring home can meet these Every person’s situation is individual to them Eg physical – hoists etc if necessary Eg cognitive – dementia friendly / knowledgeable
• Nurse on site and can support end of life care if necessary – not all care homes have a nurse on site.
• Consideration of future needs can be difficult but can ensure streamlined care and less upheaval
• Distance and ability for carer / loved one to visit.
• Adult social services support – could it be helpful to link in with adult social care services – they may help identify suitable care homes and other support such as OT and other care professionals and services.
• Cost – adult social services and PIP may be appropriate if below threshold.

Ways that you look after your mental health and wellbeing; including things that help, activities and apps:

• Myself and my partner have just started spending more time together as a couple I have found we have become stronger as a team for our boys

• I use an app called insight timer – there is lots of free stuff
  https://insighttimer.com/

• On YouTube there are soothing rhythm breathing videos that really help. I try and get my husband to join me but he doesn’t seem to find it as useful.

• I used the Headspace app which I find brilliant.
  https://www.headspace.com/

• I have Anxiety and I use two apps one called “Calm” which has meditations and visualisation exercises (have kid-friendly ones too). The second one l I use is called “What’s Up”. The app shares information on Anxiety etc and negative thinking patterns and how to deal with them.
  https://www.calm.com/
  https://www.thewhatsupapp.co.uk/

• Other than meditation activities, I also write short stories/poems which get me ‘in the zone’ whilst writing them when I feel overwhelmed or anxious.

We have a family who are looking for an off road buggy for their two year old child. They are aware of Delichon buggies and are asking if anyone has a different make that they would recommend:

• Special tomato running buggy has been great for us!
• Out & about nipper. The best off road buggy.
• We love our Delichon, a friend of ours uses a Hippocampe chair with his son https://www.hippocampe.co.uk/
• I had an Out and About Nipper before getting my Delichon, the O&A was easy to fold, stayed shut when folded, was stable on uneven ground and tackled really rough terrain with ease.
• I got a specialist buggy for my little one from Wheelchair services where I live.
• We have a baby jogger city mini 2 and love it! It’s got a big seat with lay flat recliner, and foot rest. Large basket and 2 large peek a boo windows in the large hood
• I would definitely recommend a baby jogger! Although I would recommend going to a store that stocks them and trying them all out as I think some of their off-road buggies are much smaller compared to our city mini 2! Hope this is helps

An adult community member with limited mobility has asked if anyone has any recommendations of adapted exercise equipment that they use to help maintain their muscle function:

• We use a vibration plate with Fia in her standing sling but my favourite piece of equipment is the motomed – a motorised exercise bike that you can use sitting in a wheelchair. We purchased ours off of Ebay but I believe the company do hire purchases/payment plans. They also have newer versions for arms and legs. Fia uses an innowalk at school but these retail around 20k.
• I pay to go to AlterG locally every 2 weeks to help with walking. It is anti gravity treadmill. It feels strange to start with but it takes your weight to make it easier to walk and exercise. I got up to 15 minutes this week. Some weeks are easier than others.
• I bought an electric leg exerciser which automatically lifts your feet in a easy slow motion, it just reminds my legs to move. This is very good.

Has anyone hired a larger wheelchair accessible van in the UK? If so which company did you use and how easy was the process, any additional information which you think would be helpful to know.

• We have a Peugeot Boxer. The process was very good.

Company: GM Mobility
Website: https://www.gmmobility.co.uk/
Location: Based in Devon, operate across the UK

Other nationwide company suggestions:

• Allied Mobility
• Angel Vehicle Hire
• Enterprise Flex-E-Rent

We have parents who have a 10 year old son who is struggling in the heat. He is suffering from redness in his groin and upper thigh area due to being hot and sweating in this area. They have tried Sudocrem and placing a flannel in the area but neither are helping.

• We use Derma-S barrier spray we swear by there Derma-S brands.
• The clothes with silver in might help with this too? Worked wonders on our son’s underarms.
• Once soreness has healed try cotton cycling shorts. As for healing I would have said Sudocrem but you’ve tried that so next thought is Aloe vera.
• My son is on prescription medi honey due to incontinence. Always red. Air is the best medicine for redness but I know that’s difficult with incontinence
• I use Medi Derma Pro which comes as a wash , ointment , cream, wipes or spray or, medi honey, both very good.
• There is a product called Cavilon that puts a film on the skin it’s available in several forms and as a children’s community nurse I used the barrier cream on children. There is another product also called Proskin that is available also as a barrier cream. People can buy themselves or ask for it to be prescribed by GP. Trying to expose the area will help but not always practical.
• Sometimes a cream such as cavilon which is available on prescription is helpful alternatively Derma-S care.
• Cavilon is a brilliant cream to use.. you can get it in lollipop stick form and in tubes … We’ve used it quite a lot It can be applied once and will do about 3 changes before it needs reapplying. Washing then drying by patting (even when using wet wipe) might help, and if your feeling brave just letting the air get to everything (even if it’s for 10mins).
• I am using derma-s as a soap alternative and cavilon cream which has definitely helped. I have also had more naked time with a fan.
• I use Proshield Plus Skin Protectant for my son on his creases great for taking redness out and preventing skin breaks. I get it prescribed recommended by the hospice, apparently all the children used it.

Suggestions for festive gifts for symptomatic children and fun inclusive activities for the whole family to share.

• To create festive bags, each with a different Toniebox story inside and listen to them together each night before bed as a family

Festive gifts for symptomatic children

• Audio books
• Fluffy socks
• Ceiling light projector
• Microwavable teddy
• Music – CDs or create a playlist
• Tickets to see musical or theatre performance
• Aromatherapy oils
• Sensory toys to hold and play with – crinkly, textured or makes a sound

Fun inclusive activities for the whole family to share

• Watch a film together
• Make a playlist of all your family’s favourite songs
• Play with slime or playdough
• Play a game – suggestions included pass or keep up the balloon, bubble making and indoor skittles
• A trip to the cinema
• Listen to an audio book together
• Wrap up warm and visit a zoo or wildlife park

Suggestions of devices that have worked well for you/your loved one and your experience using them.

• We use this for my mum. It tracks her location and has a falls detector and emergency button: https://personalalarms.org/products/suresafego

• Suresafe offer different types of devices, my father uses a fall alert pendant but they have a watch option as well: https://personalalarms.org/products

• I have had a fall where the fall detection of my Apple Watch kicked in straight away. I would certainly recommend this as an option. This is a link to the Apple website page: https://support.apple.com/en-gb/108896

• I have a Samsung Galaxy Watch which has hard fall detection: https://www.samsung.com/uk/support/mobile-devices/how-to-set-up-fall-detection-on-the-galaxy-watch/UK