Alex TLC & Me

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How has Alex TLC supported you on your leukodystrophy journey?

Everyone’s experience is unique, and we’d love to hear yours.

Whether you’ve:

Received direct support from our team
Joined our Online Community Meetings
Attended a Community Weekend
Benefited from our Grant Programme
Connected with others through Connecting Together or our Facebook Group
Used our information and resources

Your story matters

By sharing your experience, you’ll help us demonstrate the real impact of Alex TLC’s work on individuals, families and carers affected by leukodystrophy. These stories are invaluable in helping us raise awareness, inspire supporters, strengthen fundraising campaigns and secure funding through grant applications, enabling us to continue supporting our community.

Want to help?

Simply submit your content below! Thank you for helping us show the difference that Alex TLC makes every day.

Name

First

Last

Postcode/Zip Code

Type of leukodystrophy

Upload your photo(s) and/or video(s)

Drag & Drop Files, Choose Files to Upload You can upload up to 10 files.

Tell us how Alex TLC has helped you

This can be through direct support, attending events (online community meetings, Community Weekends), financial support through our Grant Programme, Connecting Together, our Facebook group and using our information/resources.

Can we use your first name in our campaigns?

I am happy for Alex TLC to use my first name.
I would prefer to remain anonymous.

Declaration

By completing this form, I give permission for my photo(s) and/or video(s) and story to be used across all areas of Alex TLC’s work e.g. campaigns, awareness activities and funding applications. This can be either online or in print, including the Alex TLC website, newsletters, social media, leaflets and posters. I understand that Alex TLC will seek my permission to use my photo(s) and/or story in a press article or for any usage by an external organisation.

We would love the opportunity to keep you up to date about our work, events and other ways you can support us. Please let us know if you would like to receive updates by email.

Yes, I would like information about leukodystrophy and the work of Alex TLC.

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