Please send your photos and videos and help us demonstrate how leukodystrophy can affect people of all ages and ethnicities
Leukodystrophies are a devastating group of conditions that can affect men, women, and children of all ages, backgrounds, and ethnicities. It doesn’t discriminate, and neither should the awareness we raise.
That’s why we’re committed to using real images of real people living with leukodystrophy across everything we create, from social media and website content to public awareness campaigns.
With your help, we can continue to shine a light on the far-reaching impact of leukodystrophy and show the world how it affects individuals and families from all walks of life.
We want to hear from you. Simply fill in the form below and share as much or as little as you’d like, whether it’s a video showing everyday life, photos (before and after, current or a selection), and/or some short text about your experience.
