Posted on 16th December 2025

Find out about our Connecting Together programme

Connecting Together involves us putting families and individuals in our community in contact with each other.

Connections made can be based on the type of leukodystrophy, symptoms experienced or similar challenges faced. This month we have made several connections within the community, including two families affected by the same type of rare leukodystrophy.

To find out more: Peer Support