Our next online meeting will be taking place on Wednesday 20th May (BST – UK time).
Our general monthly online community meetings are open to anyone affected by leukodystrophy, whether you are an affected individual, a parent, a partner, a family member or a friend.
The meeting lasts for an hour and a half to allow time for a range of different topics to be discussed. They provide an opportunity to connect with other members within our community, ask questions and share experiences. If you haven’t been to a meeting before, please let us know and we’d be happy to answer any questions you may have.
Please contact info@alextlc.org if you would like to attend or you have any questions.
