Posted on 29th September 2025

Online community meeting

Our next online community meeting will be taking place on Tuesday 21st October 11:30-13:00 (BST)

The meeting lasts for an hour and a half to allow time for different topics to be discussed. They are open to anyone affected by leukodystrophy, whether you are an affected individual, a parent, a partner, a family member or a friend.

These meetings provide an opportunity to meet other people in a similar situation, ask for advice and get support from people who truly understand the challenges you are facing. If you haven’t been to a meeting before, please let us know and we’d be happy to answer any questions you may have.

Please email info@alextlc.org if you’d like to attend or you have any questions.