Posted on 10th October 2025

You can still share your leukodystrophy journey

Our life with leukodystrophy campaign will continue throughout the year to provide an opportunity to share real life stories of leukodystrophy.

The aim is to shine a light on the far-reaching impact of leukodystrophy and the challenges faced every day by our community members.

To share your leukodystrophy journey, complete our online form: Share your leukodystrophy journey