Leukodystrophy Awareness Month takes place every year throughout the whole of September. It provides an opportunity to raise awareness of leukodystrophy, including the symptoms and the impact of the condition on individuals and families, as well as what we do as a charity.
View our ‘Life with leukodystrophy’ campaign
We have launched our ‘Life with leukodystrophy’ campaign. Our campaign aims to shine a light on the far-reaching impact of leukodystrophy and the challenges faced by our community members.
We will be sharing content across our social media channels throughout September. Today we are sharing Elliot’s story who lives with adrenoleukodystrophy (ALD). You can help raise awareness by sharing our posts on your own social media accounts.
To view the stories of our community members, visit: Life with leukodystrophy
Help us hit 100 donors
Those affected by leukodystrophy often face fear, isolation, and uncertainty. Right now, just 26 people give regularly to help us stand beside them. We want to grow that number to 100 regular donors — and we’re asking you to join us.
Regular donations cut down on administration costs and provide us with a reliable income to plan our future projects and services. Even a small amount each month really makes a big difference to our work.
To find out more, visit: help us hit 100
Print and display our poster
You can help raise awareness of Leukodystrophy Awareness Month by printing and displaying our poster.
You could ask your workplace whether it could be displayed in your break room. Or speak to someone at your local library, coffee house or gym if they would mind it being put up.
We hope displaying the poster in community locations will help to increase awareness of leukodystrophy in the general public.
To download: LAM poster
Visit a Light Up Blue location
There are 33 locations lighting up blue in September for Leukodystrophy Awareness Month!
To view the locations lighting up, visit: Light Up Blue 2025
If you’re planning on visiting a Light Up Blue location, we’d love to see your photos. You can either email us: info@alextlc.org or post to your social media with the hashtags: #AlexTLC #LightUpBlue #Leukodystrophy.
Use our Leukodystrophy Awareness Month banner
You can help raise awareness by downloading our banner and applying it as your cover photo.
By displaying the banner you will help to raise awareness of leukodystrophy within your own social networks.
To download: LAM25 banner
