Initially piloted in Leeds by Dr Lydia Green and nurse specialist Hannah Geldert, the IWMD patient passport is now being rolled out to the whole of the IWMD North service.
The aim is to bridge the communication gap between specialist services and local teams. The patient passport is designed with patients at the centre the passport. The passports are completed following a clinic appointment and then updated following future clinic appointments.
It’s a short (usually two sided) document which is:
- a collaborative document which is updated pre and post clinic appointments together with families.
- contains important information about the child’s IWMD condition and how it affects them and their family day to day
- Individualised for each family.
- Can be shown to anyone involved in the care of the child. For example, schools, nurseries and other family members
- Can be used alongside a hospital passport which the child may already have in place.
Who will be offered an IWMD patient passport?
They are currently only for paediatric patients
All patients under the IWMD North service, Leeds/Manchester, children’s service will be offered a patient passport.
Feedback
There has been positive feedback so far – see the feedback bubbles from parents and carers who’ve used the patient passport.
Questions, please email info@alextlc.org
