We are pleased to share our Community Weekend Impact Report 2025. This report was based on an online feedback survey which attendees completed. This included individuals and families affected by leukodystrophy and professionals (doctors, researchers, pharmaceutical representatives and patient advocates). The event included a science day for professionals, which was co-hosted with Leukolabs, and two days for everyone, including presentations, workshops and children’s activities.
To view the report: Community Weekend 2025 Impact Report