Our ask our community for August:
A community member wants to be put in touch with another single parent family who only have an affected child/children with profound difficulties or disabilities, and no other children.
If you would like to connect, please email info@alextlc.org
We have feedback to share from our community ask from last month.
We have parents who have a 10 year old son who is struggling in the heat. He is suffering from redness in his groin and upper thigh area due to being hot and sweating in this area. They have tried Sudocrem and placing a flannel in the area but neither are helping.
- We use Derma-S barrier spray we swear by there Derma-S brands.
- The clothes with silver in might help with this too? Worked wonders on our son’s underarms.
- Once soreness has healed try cotton cycling shorts. As for healing I would have said Sudocrem but you’ve tried that so next thought is Aloe vera.
- My son is on prescription medi honey due to incontinence. Always red. Air is the best medicine for redness but I know that’s difficult with incontinence
- I use Medi Derma Pro which comes as a wash , ointment , cream, wipes or spray or, medi honey, both very good.
- There is a product called Cavilon that puts a film on the skin it’s available in several forms and as a children’s community nurse I used the barrier cream on children. There is another product also called Proskin that is available also as a barrier cream. People can buy themselves or ask for it to be prescribed by GP. Trying to expose the area will help but not always practical.
- Sometimes a cream such as cavilon which is available on prescription is helpful alternatively Derma-S care.
- Cavilon is a brilliant cream to use.. you can get it in lollipop stick form and in tubes … We’ve used it quite a lot It can be applied once and will do about 3 changes before it needs reapplying. Washing then drying by patting (even when using wet wipe) might help, and if your feeling brave just letting the air get to everything (even if it’s for 10mins).
- I am using derma-s as a soap alternative and cavilon cream which has definitely helped. I have also had more naked time with a fan.
- I use Proshield Plus Skin Protectant for my son on his creases great for taking redness out and preventing skin breaks. I get it prescribed recommended by the hospice, apparently all the children used it.