Our Research Analyst, Kristina, has had a great day attending The Living Well Symposium in Stoke-on-Trent.
The event was co-run by Metabolic Support UK and Beacon for Rare Diseases. The aim of the event was to bring rare disease advocates together to place greater focus on how we embed living well in our society, laws, and policy.
The event is part of the Living Well Movement which has two key goals:
- rare disease community to understand and advocate for their rights under the Equality Act 2010
- “Living Well” defined by the rare disease community and for these definitions to be reflected in rare disease policy
To find out more about the campaign: Living Well Movement
