We are attending the 13th ISNS European regional meeting
Karen Harrison, our Director of Support, will be attending the 13th International Society for Neonatal Screening (ISNS) European regional meeting in Luxembourg.
The meeting will be taking place from 23rd to 26th March. The meeting is attended by professionals advocates from the newborn screening community. The theme of the meeting will be on establishing a quality newborn screening service with practical presentations from experienced speakers to stimulate in depth discussions.
To find out more: SNS2025
Karen Harrison, our Director of Support, will be presenting at the 13th ISNS European regional meeting. She was invited to present at this prestigious event about her family perspective on newborn screening.
Karen will be sharing her personal story about late diagnosis for ALD. She will be highlighting how it’s the same story for many families around the world, where there is a treatment for their disease but due to not being screened at birth they miss the window of opportunity for timely treatment.
A big thank you to the ISNS funders to enable Karen to attend the event and present about this important topic.
