Our Director of Support, Karen, attended the Meeting of the APPG (All Party Parliamentary Group) on Genetic, Rare and Undiagnosed Conditions on the topic of Newborn Screening today (Wednesday 22nd October).
The APPG is based on the recent report by Genetic Alliance UK: Time to decide: learning from international approaches to newborn screening decision
They will be discussing the value of newborn screening and what the UK Government can do to improve decision-making.
