Yaya Foundation are holding a virtual conference for 4H leukodystrophy. The are holding a series of weekly sessions on different topics. The sessions are free to attend but you must register to receive the zoom link to join:
Science Update with Dr. Bernard – 16th January
4H 101 with Dr Margo Hutchison – 22nd January
Living with Uncertainty – 31st January
Looking ahead to Clinical Trials – 6th February
Supporting Unaffected Siblings – 12th February
Family Call: Conference Debrief – 1st March
If you aren’t able to attend a live session but have questions, they are offering the opportunity to submit your questions ahead of the session so that they can be answered during the presentation.
The sessions will be recorded and uploaded to their YouTube channel (apart from the final session is a Family Call): Yaya Foundation for 4H Leukodystrophy
