Losing a loved one to a leukodystrophy has a devastating impact on the whole family. Bereavement services can help all family members with next steps, including funeral arrangements and grief counselling. Alex TLC can help with this, either by helping you to find relevant services or providing a listening ear; particularly valuable if you have been receiving support from us throughout your loved one’s condition and feel a need to talk to someone who understands your pain.
When you face losing a loved one or have already lost a loved one, knowing how to navigate through practical and emotional situations can be a struggle at a time when it is already very difficult to cope. The following resources are designed to provide information and support.
Losing a child can be an especially difficult and emotionally devastating loss. To help parents, family members and friends of those who have lost a child, the following resources are available to provide support and information.
Grief is a very personal journey. Every bereavement is different and every individual grieves differently. There is no ‘right or wrong’ way to feel. These are resources providing information about grief and grieving.
The following resources are to assist children who have lost someone close to them or are facing a significant loss. It is recommended that the content is reviewed by an adult first to ensure the content is appropriate for the child’s age/development.
When we lose people we love, we may decide to honour their memory, celebrate their life, their passions and interests. Here are a few suggestions of ways to honour and remember a loved one;
The loss or anticipated loss of a loved one is one of the biggest events that can happen in our lifetime. It can be an all-consuming experience that leaves us devastated, bewildered and having no relief from the emotional pain of losing something so precious. We have provided information and links focused on how to take care of yourself.
