We have several different printable leaflets available below, please click on the links to view a downloadable PDF version.
Support Services poster for clinic displays
If you would printed copies posted to you, then please email info@alextlc.org
We understand leukodystrophy affects the whole family, including the children. We have created a Children’s Book to support the siblings of children diagnosed with childhood cerebral adrenoleukodystrophy (CCALD). The primary goal of the book is to support children and their families to build emotional resilience, and openness to talk and ask questions about a diagnosis of CCALD. We hope in the future to produce further children’s book to cover different types of leukodystrophy and topics.
We have produced practical information leaflets for Adrenoleukodystrophy (ALD), which can be found on the condition page. These leaflets can be printed for future reference.
We are currently developing Alexander Disease leaflets and will make them available once completed. We hope in the future to develop further information leaflets for different leukodystrophies.
