We have another ask our community for April.
A community member would like to find out about others’ experiences of Bone Marrow Transplant (BMT) follow up care after a BMT for Adrenoleukodystrophy (ALD). They would like to ask community members, what post-transplant care did your child received following a BMT? Were they referred to the late effects clinic?
Please send details of your experience to info@alextlc.org
