The Northern Ireland Department of Health published its third progress report on the Rare Diseases Action Plan covering progress made in 2024-25.
Each UK country has developed a nation-specific Action Plan to implement the UK Rare Diseases Framework, which aims to improve the lives of people living with rare diseases. It identifies four priority areas for action:
- Faster diagnosis;
- Increased awareness of rare diseases amongst healthcare professionals;
- Better coordination of care;
- Improved access to specialist care, treatment and drugs.
To view the progress report: NI Rare Disease Action Plan – Progress Report 2024-25
To view the press release from the Department of Health: Department publishes 2024-25 Progress Report
