Thank you to everyone in our community who have applied for a rare patient passport – we hope that it’s helped to communicate your/your loved one’s rare condition to new people.
Here is a quick update about the project:
- Over 3000 applications in total now from over 50 countries
- 60 patient group partnerships
- 55 applications for an Alex TLC passport
To find out more and to apply for your own patient passport: CamRARE Rare Patient Passport
