We have been campaigning for Adrenoleukodystrophy (ALD) to be added to the UK Newborn Screening Programme.
At the beginning of January 2021, we completed a public consultation to have ALD added to the UK Newborn Screening Programme but sadly it was unsuccessful. We are currently working with a team of doctors who are helping to get the evidence together for when newborn screening for ALD is reviewed again by the national screening committee later this year.
To find out more about our Screen Our Boys Campaign, visit: Screen Our Boys
