Cure MLD, The Calliope Joy Foundation and NORD Launch A Research and Engagement Study of Metachromatic Leukodystrophy (MLD)

https://www.prnewswire.com/news-releases/cure-mld-the-calliope-joy-foundation-and-nord-launch-a-research-and-engagement-study-of-metachromatic-leukodystrophy-mld-301355239.html

Research study is open to participants worldwide to advance understanding and treatments for Metachromatic Leukodystrophy, a recessive genetic disorder that is characterized by the accumulation of fats (lipids) called sulfatides causing damage to the nervous system. The new study, Metachromatic Leukodystrophy Community United Research and Engagement Survey (MLDCures), creates a platform for patients around the world to share information about Metachromatic Leukodystrophy (MLD). Its purpose is to build an international resource to be used by scientists in future research.