Alex The Leukodystrophy Charity. Helping to Cope - Helping to Hope.
  • 020 7701 4388
  • info@alextlc.org
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  • About leukodystrophy
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    What is leukodystrophy?

    A-Z of leukodystrophy

    Symptoms and their management

    For professionals

  • Coping with leukodystrophy
    Back

    Condition management

    • Symptoms and their management
    • Available treatments
    • Services and equipment
    • Useful links
    • NHS England Patient Service and Registry

    How we support you

    • One to one support
    • Our counselling service
    • Peer support
    • Children's book for ALD
    • Grant programme

    Our community

    • Community Weekend 2026
    • Our events
    • Ask our community
    • Personal stories
    • Never forgotten
    • Share your leukodystrophy journey
  • Research and projects
    Back

    Campaigns and projects

    • Screen Our Boys Campaign
    • Leukodystrophy Awareness Month
    • Life with leukodystrophy
    • Support resources for young people
    • Rare Disease Day
    • Community Weekends

    Our research summaries

    • March 2026
    • February 2026
    • January 2026

    Research

    • Research and Alex TLC
    • Current clinical and observational trials
    • LEUKOLABS
  • Get involved
    Back

    Donate

    • Ways you can donate
    • Where your money goes
    • 50/50 Cash Draw
    • Help us hit 100

    Fundraise

    • Fundraising ideas
    • Fundraising events
    • Supporter stories

    Support us

    • Raise awareness
    • Volunteer
    • Shop with us
    • Corporate opportunities
  • About us
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    Our history

    • Our vision and mission
    • Sara’s story
    • Karen’s story

    Our people

    • Our team
    • Trustees
    • Medical advisors
    • Celebrity supporters
    • Partnerships

    Governance and operations

    • Impact reports
    • Safeguarding
    • Join our team
    • Press and media
    • Working with industry
    • Contact us
  • News
  • Shop with us
    Back
    • Charity shop locations
    • Shop donations, collections and deliveries
    • House clearances
    • Our eBay shop
    • Our Vinted shop
    • Our Online Shop
    • Teemill Shop
    • DontSendMeACard ecards
    • Volunteering in our shops
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  • 020 7701 4388
  • info@alextlc.org

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BMA Patient information awards commended 2016
Registered with Fundraising Regulator

Alex TLC, 45 Peckham High Street, London, SE15 5EB

Registered Charity no. 1106008 (England and Wales) SC051539 (Scotland). Company Registration no. 5142341

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