Have you got your Patient Passport yet?
We are one of the many patient groups partnering with CamRARE bring their ‘This Is Me’ Rare Patient Passport to our community. The patient passport provides a tool to communicated your/your loved one’s rare condition to new people. Please make sure to select ‘Alex TLC’ when asked if you’d like a branded passport from a specific patient group.
To sign up for yours, please complete the online form: Rare Patient Passport form