Posted on 18th December 2025

MLD Newborn Screening – US update

The U.S. Department of Health and Human Services (HHS) Secretary Robert F. Kennedy, Jr. approved the addition of Metachromatic Leukodystrophy (MLD) to the Recommended Uniform Screening Panel (RUSP) following scientific review and public comment. The RUSP is the list of conditions the HHS secretary recommends for universal newborn screening.

To read the full press release: HHS Gov – Press Room