After the recent decision from the UK National Screening Committee not to add Metachromatic Leukodystrophy (MLD) to the newborn screening programme in the UK, several news articles have been published which highlight the importance of newborn screening for MLD from a family’s perspective and in a professional’s opinion.
“A Norfolk mother campaigning for expanded newborn screening has won the backing of her MP after an emotional meeting”
https://www.edp24.co.uk/news/25825192.mp-backs-norfolk-mum-popstars-newborn-testing-campaign/
“And Prof Jones, a world-leading expert in metabolic diseases at the University of Manchester, said: “This treatment only works if you use it before the children start to develop their brain disease, and that’s why we need newborn screening.”
https://www.thesun.co.uk/health/38136165/top-doctor-life-saving-test-failure-baby-health-urgent/
