ALD Connect undertook an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting to understand, from the patient and caregiver perspective, the impact of living with adult manifestations of Adrenoleukodystrophy (ALD).
A research article has been published to discuss the results of the virtual EL-PFDD meeting which took place with 254 individuals, including 153 adult patients with ALD and/or caregivers.
To read the article: Living with adrenoleukodystrophy: adult patient and caregiver perspectives
