Our CEO, Sara Hunt, spoke to Peter Russell from Medscape UK about ALD being included in The Generation Study which is screening 100,000 newborns for genetic conditions.
Sara Hunt, founder of the leukodystrophy charity Alex, welcomes the Generation Study, which she said had been a “long time coming”. Her oldest son, after whom the charity was named, died at age 19 years, 12 years after being diagnosed with ALD. His younger brother, who had also inherited the genetic disorder, was scanned every year and underwent a bone marrow transplant.”
To read the article: https://www.medscape.co.uk/viewarticle/nhs-test-100-000-newborns-genetic-conditions-2024a1000iev
