The APBD Research Foundation is conducting a survey of patients and caregivers to prepare our community for future clinical trials – referred to as “clinical trial readiness.”
When planning and designing a clinical trial, it is important to understand how things like traveling to a trial site, the way information is collected, and how the treatment is delivered may affect whether a patient chooses to enroll in the study.
Participation from APBD patients and carers will help them understand what matters to patients and their families when it comes to participating in clinical trials for new treatments.
You must be 18 years or older and an APBD patient or the caregiver of an individual with APBD to participate.
