020 7701 4388
info@alextlc.org
Get support
Donate
Search
About leukodystrophy
Back
What is leukodystrophy?
Understanding genetics
A-Z of leukodystrophy
Symptoms and their management
For professionals
Coping with leukodystrophy
Back
Condition management
Symptoms and their management
Available treatments
Services and equipment
Useful links
NHS England Patient Service and Registry
How we support you
One to one support
Our counselling service
Peer support
Children's book for ALD
Grant programme
Our community
Community Weekend 2026
Our events
Ask our community
Personal stories
Never forgotten
Alex TLC & Me
Research and projects
Back
Campaigns and projects
Childhood Dementia Initiative
Community Weekends
Leukodystrophy Awareness Month
Life with leukodystrophy
Link Between Adrenoleukodystrophy and Primary Adrenal Insufficiency
Screen Our Boys Campaign
Support resources for young people
Our research summaries
August 2026
July 2026
June 2026
Research
Research and Alex TLC
Current clinical and observational trials
LEUKOLABS
Get involved
Back
Donate
Ways you can donate
Where your money goes
50/50 Cash Draw
Help us hit 100
Fundraise
Fundraising ideas
Fundraising events
Supporter stories
Support us
Raise awareness
Volunteer
Shop with us
Corporate opportunities
Philanthropy & Major Giving
About us
Back
Our history
Our vision and mission
Sara’s story
Karen’s story
Our people
Our team
Trustees
Medical advisors
Celebrity supporters
Partnerships
Governance and operations
Impact reports
Safeguarding
Join our team
Press and media
Working with industry
Contact us
News
Shop with us
Back
Charity shop locations
Shop donations, collections and deliveries
House clearances
Our eBay shop
Our Vinted shop
Our Online Shop
Teemill Shop
DontSendMeACard ecards
Volunteering in our shops
Home
Athetosis
Athetosis
Abnormal muscle contraction causing slow, involuntary writhing of the limbs, possibly continuously
