Patient Passports

There are two types of patient passport available for our community members:

CamRARE Patient Passport

We are one of the many patient groups partnering with CamRARE bring their ‘This Is Me’ Rare Patient Passport to our community. The patient passport provides a tool to communicated your/your loved one’s rare condition to new people. Please make sure to select ‘Alex TLC’ when asked if you’d like a branded passport from a specific patient group.

To sign up for yours, please complete the online form: Rare Patient Passport form

NHS England IWMD Patient Passport

They are currently only for paediatric patients under the IWMD North service, Leeds/Manchester, children’s service. The aim is to bridge the communication gap between specialist services and local teams. The patient passport is designed with patients at the centre the passport. The passports are completed following a clinic appointment and then updated following future clinic appointments. To find out more, please speak to a member of your child’s IWMD team.

It’s a short (usually two sided) document which is:

• a collaborative document which is updated pre and post clinic appointments together with families.
• contains important information about the child’s IWMD condition and how it affects them and their family day to day
• Individualised for each family.
• Can be shown to anyone involved in the care of the child. For example, schools, nurseries and other family members
• Can be used alongside a hospital passport which the child may already have in place.