Are you or a loved one affected by Metachromatic Leukodystrophy (MLD)?
We need help with developing a patient journey for patients with MLD. We’re looking for individuals and families to fill in a template according to your experiences with MLD from a patient or caregiver perspective.
To view further information and to access the template: Template MLD patient journey
The completed templates must be sent to Carola.Reinhard@med.uni-tuebingen.de by Sunday 26th April.
Questions? Please contact info@alextlc.org
