Murdoch Children’s Research Institute are conducting a natural history study in individuals with Leigh Syndrome.
The aim is collect health information to understand how the disease develops and progresses. The data from natural history studies help researchers better understand a particular disease, identify potential treatments, and support medication development.
Individuals between the ages of 0 and 75 with a genetic diagnosis of Leigh Syndrome are invited to participate in the study.
To find out more: Leigh Syndrome Roadmap Project (LSRP)