Our Community Weekend 2026 will be taking place from Friday 9th to Sunday 11th October at The Manchester Deansgate hotel.
Friday 9th October
Daytime: Science Day (professionals only)
Late afternoon: community members arrived for the start of our Community Weekend
Saturday 10th – Sunday 11th October
Our Community Weekend for community members and professionals. The event includes presentations, community workshops, discussion groups, professional roundtable discussions and children’s activities.
EVENT FULLY BOOKED
As of 12/02/2026 11:20am the event is fully booked. If you would like to attend, please complete the booking form and you will be placed on a waiting list. A member of staff will be in touch once your booking has been processed to provide further information and answer any questions you may have.
To book for the event, you must complete our online booking form: CW26 booking form
There are a limited number of places available for the event, so please complete our booking form as soon as possible to secure your place. This form should only be completed by individuals and families affected by leukodystrophy. If you are a professional, researcher, patient advocate or pharmaceutical representative and would like to attend the event, please email info@alextlc.org
We are offering the option of free virtual attendance for those unable to attend the event in person. The presentations will be live streamed from the main room at the event on Saturday 10th and Sunday 11th October. We will be recording all presentations from across both conference rooms and these will be uploaded to our YouTube channel after the event.
Please complete our virtual attendee registration form: CW26 virtual attendance
See the provisional virtual agenda below, please be aware this is subject to change:
Our Community Weekend bring the leukodystrophy community together and helps to ensure that everyone affected receives the support they need. We need as much support as possible to make our Community Weekends the best they can be. Even the smallest donation can make a big difference, so please give what you can.
Chiesi Limited has provided a financial grant for the 2026 Community Weekend – North, with support being provided to cover the venue costs as well as costs of the live streaming / recording of presentations only; Chiesi has had no other involvement with this event.
