Our CEO, Sara Hunt, and Support Services Manager, Karen Harrison, attended the ELA International Symposium on Monday 2nd and Tuesday 3rd December 2024. It was an informative two days focusing on ‘Ethics for the benefits of patients’.
Sessions included:
- Guy Alba President of ELA International introduced the symposium and gave an overview of ELA
- Professor Stephan Kemp discussed newborn screening and diagnostic biomarkers of leukodystrophies
- Professor Florian Eichler chaired a discussion about clinical trial design and real world data inclusion
- Dr Adeline Vanderver chaired a discussion about the natural history of Pelizaeus-Merzbacher Disease (PMD) and early trial updates
