Our community is made up of individuals affected by leukodystrophy and their family members. Our community members are affected by different types of leukodystrophy, however there are many similarities in their experiences and the challenges they face.

As a charity we strive to support our community throughout their leukodystrophy journey. We hope by developing a community it will provide a network of support that can be utilised by all affected individuals and family members who need it.

Want to find out more about our community members, visit our personal stories page.

Our events

Find out more about our virtual and in person events. These provide an opportunity to meet and connect with other community members.

Our events

Peer support network

We can link individuals and families affected by leukodystrophies so you can share experiences and gain mutual support. Please get in contact to find out more.

Email Alex TLC

Join our Facebook group

Meet other individuals from our community in our Facebook Group. This group is a closed group and is monitored by staff. It provides a safe place to chat and ask other members questions.

Join our Facebook Group