Genetic Alliance have shared the fantastic news that health ministers across the UK have agreed to extend the UK Rare Diseases Framework by one year.
Genetic Alliance UK has played a significant role in the delivery of the UK Rare Diseases Framework. This is a vital step and ensures continuity in rare conditions policy for the rare disease community – providing an opportunity to refocus, develop priorities, and shape longer-term future of rare conditions policy.
Read about Genetic Alliance UK’s Framework campaign and their work to secure the extension: https://geneticalliance.org.uk/our-campaign-for-a-new-uk-rare-diseases-framework/
