Posted on 3rd November 2023

Helix of Love

A collection of poems written by parents of children with rare genetic conditions

Helix of Love is a collection of poems written by parents of children with rare genetic conditions who explore the lived experience of rare conditions. The poems reflect on what everyday life is like at a time when so much focuses on the promise of genomic medicine. The poems were published in September.

To view these wonderful poems, please visit: Helix of Love poems