This year’s Rare Disease Day theme is equity. Between November 2025 and February 2026, Genetic Alliance UK ran a survey and a series of workshops exploring what equity really means to people living with rare conditions. A patient organisation, Breaking Down Barriers, helped support in delivering their workshops.
The findings of our survey and workshops have been beautifully captured by illustrator and paramedic, Rose Matheson.
To view a PDF of the image: Equity Illustration
