Our Community Weekend 2026 will be taking place from Friday 9th to Sunday 11th October at The Manchester Deansgate hotel.
Friday 9th October
Daytime: Science Day (professionals only)
Late afternoon: community members arrived for the start of our Community Weekend
Saturday 10th – Sunday 11th October
Our Community Weekend for community members and professionals. The event includes presentations, community workshops, discussion groups, professional roundtable discussions and children’s activities.
To book for the event, you must complete our online booking form: CW26 booking form
There are a limited number of places available for the event, so please complete our booking form as soon as possible to secure your place.
This form should only be completed by individuals and families affected by leukodystrophy. If you are a professional, researcher, patient advocate or pharmaceutical representative and would like to attend the event, please email info@alextlc.org
We will be offering the option of virtual attendance on Saturday and Sunday. This will be for the presentations in the main room which will be live streamed directly from the event.
We will share more information shortly, including the link to the online registration form.
Our Community Weekend bring the leukodystrophy community together and helps to ensure that everyone affected receives the support they need. We need as much support as possible to make our Community Weekends the best they can be. Even the smallest donation can make a big difference, so please give what you can.
