Leukodystrophies are a devastating group of conditions that can affect men, women, and children of all ages, backgrounds, and ethnicities. It doesn’t discriminate and affects people from all walks of life.
Our ‘Life with leukodystrophy’ page is dedicated to sharing the journeys of individuals and families affected by leukodystrophy. With an aim to shine a light on the far-reaching impact of leukodystrophy and the challenges faced by our community members, in their own words.